Newsletters
Easter Newsletter
Easter has for many centuries has given us an uplifting spiritual message of hope, bringing comfort to millions of people around our world. It comes when our countryside and even urban areas hopefully come alive with the beauty of daffodils, other flowers and trees. We all need hope in this life and that can often can be quite challenging at times including those who must do battle with NS in their lives, with family and friends accompanying them on that difficult journey.
Thankfully exciting research into NS continues to grow at great speed due to using modern technology and because of hardworking and gifted world leading researchers and clinicians that we are fortunate to have in the UK. Much exciting research happening in our wider world too.
NeST really grew out of one parents’ isolation when his son was a patient in a renal ward suffering from NS and he felt quite isolated. Since those days, NeST has gone from strength to strength forming a family of those with the condition in its many forms, including doctors, researchers, nurses, charities, friends and more. We will celebrate NeST’s 20th birthday with a day reflecting on the timeline of progress made, relationships built, advances made, and full of hope as we look to the future. I hope many of you will be able to attend this special day at the Bristol laboratories on Wednesday the 30th of July at the ‘Dorothy Hodgkin Building’ Whitson St, Bristol BS1 3NY. More details to follow soon which will be updated on our website and Facebook pages.
It has been a long-time aim of NeST to visit all parts of the United Kingdom and this May we celebrate this with a patient day in the historic city of Stirling, Scotland. Stirling is an ancient city with excellent transport links to many parts of Scotland. As always, this day is open to all people and not just those in Scotland. Our event will take place in Stirling, Scotland on Friday the 16th of May 2025. Venue details as follows - Stirling Enterprise Park, John Player Building, Stirling, FK77RP. (Free parking) Meeting Space - STEP Commercial Property Stirling. Free Registration, Lunch and refreshments. Children are welcome! Registration link - https://www.eventbrite.co.uk/e/national-information-day-for-those-with-nephrotic-syndrome-tickets-1265838600329?aff=oddtdtcreator
Thankyou so much to everyone’s support to NeST and the Research team by holding many wonderful fundraising events! The latest inspiring fundraiser was in Southampton last month at ‘South West Trains’. A Very Big Thankyou from NeST & the Research Team to Sorcha Whelan and all her wonderful colleagues at 'South West Trains' for kindly fundraising on her daughter’s birthday for Nephrotic Syndrome Research!! An AMAZING sum of £1,358.44 was raised!
So as many celebrate Easter, our land enjoys spring and hopefully continued good weather. I wish you all a Happy Easter.