Latest News

Latest News

Merry Christmas and a Very Happy New Year from ALL of us at NeST & the Bristol Research Team!!!

Monday, December 22, 2025

 
Thankyou SOOOO much for all your very kind and generous donations and all your fundraising efforts over the year -you are all SO AMAZING & such inspirational fundraisers!!! Just recently I was able to give the Research team £48,000 towards Nephrotic Syndrome Research!! They were incredibly grateful indeed!!!


Clinical trials are set to begin in the next two years — a huge milestone thanks to your support. Such exciting news!!!! Read the latest updates on our research pages and newsletter page - https://nstrust.co.uk/news-and-events/newsletters and https://nstrust.co.uk/who-we-are/research


Thankyou SO much who have helped at conference meet up's here in the UK and aboard this year! 

A Very Big Thankyou to Ann Kane (Captain) and all the wonderful members of Chesfield Golf Club in Graveley for their AMAZING fundraising over the past year!!!

Friday, December 19, 2025

Collectively from all their events which included a Valentine's Disco,Golf Tornaments,'Lady's Day',Skydive jump team and concluded last week with a Christmas sing -song have raised a staggering £25,344!!!!! Wow!!!! What an absolutely AMAZING total!!! Incredible - I am truly speechless and so very grateful to you and your wonderful members!!!


Special thanks to Debbi Skrabski for kindly visiting a second time at the Golf Club last week for the Christmas Sing -Song to represent NeST and thank them all enormously for all their hard work over the year fundraising and to talk about the progress of the research taking place at the Bristol Laboratories led by Professor Moin Saleem.I'm so very grateful to you!!!

National Lottery Award for NeST -Whoop!! Whoop!!

Thursday, December 11, 2025

Hello Everyone, Over the summer, I applied for grants to help cover NeST’s core costs, ensuring our charity — Nephrotic Syndrome Trust — can continue supporting our wonderful community despite the challenges of reduced donations in today’s difficult financial climate.
 
I’m delighted to share that we’ve been awarded an ALL AWARDS grant of £19,500 from the National Lottery Community Fund for our project, NeST Together.
 
So thrilled to celebrate this fantastic news with you all! 

 

Congratulations and a Very Big Thankyou from all of us at NeST & the Research Team to Olivia Langford for completing her challenge at the Hydox Event recently and raising the fabulous sum of £317.50 (inc gift aid) for Nephrotic Syndrome Research!!!

Tuesday, December 9, 2025



Thankyou SO much to all your wonderful family and friends who kindly gave very kind and generous donations!!! 

Wow!!! Well done Hugo -Rhy's for raising £500 for Nephrotic Syndrome Research!!! Thankyou SO much for kindly designing a bespoke design card for David James to hand out to their customers- how amazing!!! Love the design!!

Saturday, December 6, 2025

 Your talent is being sought everywhere now which is such a joy to see not only by me and your parents, but also all of us here at NeST!!! Thankyou so much again for all your hard work and dedication fundraising for Nephrotic Syndrome Trust ( NeST)!!!!


So thrilled you were gifted a wonderful day at Notts County game invitation recently too by David James staff - how exciting for you!!


Thankyou so much David James staff for this kindness to Hugo and the AMAZING gift donation,its very much appreciated indeed!!! 

A Very Big Thankyou from ALL of us at NeST & the Research Team to James Chesnet and ALL the Members of Uddingston, Chryston & District,and Wrangholm Hall Bowling Clubs for kindly raising the AMAZING sum of £560!!! Wow!!!

Thursday, November 20, 2025

I'm completely blown away by your very kind and generous donations!! Wow!!!!

Thankyou so much for our AMAZING gift donation of £1,000 via your Community Giving Scheme!!! So thrilled our charity was nominated.

Friday, November 7, 2025

 Thankyou enormously for supporting our lovely young artist Hugo -Rhy’s with his incredible fundraising efforts; it means the world to him and all of us within the NeST community as many of our loved ones endure this very debilitating kidney condition.

 

Congratulations Dave Mc Nee on completing the Great Scottish Run!!! Thankyou so much for raising the AMAZING sum of £839.75 for Nephrotic Syndrome Research!!! Wow!!! Great achievement!! Well done!!!

Tuesday, October 28, 2025

 

Please thank all your family and friends for their wonderfully generous donations!!

Love the photo of you Dave with your proud son's!

I'm so very grateful to you and your family for your continued support!!

 

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