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The Eventbrite page is now LIVE to book your tickets for our 'National Information Day for those living with Nephrotic Syndrome' which is taking place in Manchester this year on Friday the 13th of March at the following address : at the Michael Smith Building on the University of Manchester Campus, Dover St, Manchester M13 9NT. Link below.
 
  
Please note this day is for both adults living with Nephrotic Syndrome as well as parents and carers of children with Nephrotic Syndrome.
 
Children are welcome! (children need to have a ticket,so we know numbers for catering).
 
Important:Please kindly email me [email protected] with any dietary requirements for you and any members of your family in advance.(I need at least two weeks notice for caterers).
 
Children up to the age of 16 will receive a tote bag with a cuddly toy and activity books on arrival. Please kindly email your childrens names,ages and gender making sure its age appriopriate etc.. so I can make up tote bags in advance by the 2nd of March please so I have time to purchase,pack and post to the Manchester team the week before as I'm travelling up by train!
 
Free lunch and refreshments
 
Please kindly email me [email protected] to let me know any dietery requirements needed on the day.
 
Registration at 10am. Important please register in advance so we can comfortably accommodate everyone and have accurate numbers for catering.
 
The day will begin with registration at 10.30 am and finish approximately 3.30PM. We are putting together an exciting programme which is soon to be released which will include talks from both a peadiatric nephrologist and an adult nephrologist;both genetic and idiopathic nephrotic syndrome research.Dietician and psychologists will be attending too.
 

Collectively from all their events which included a Valentine's Disco,Golf Tornaments,'Lady's Day',Skydive jump team and concluded last week with a Christmas sing -song have raised a staggering £25,344!!!!! Wow!!!! What an absolutely AMAZING total!!! Incredible - I am truly speechless and so very grateful to you and your wonderful members!!!

Special thanks to Debbi Skrabski for kindly visiting a second time at the Golf Club last week for the Christmas Sing -Song to represent NeST and thank them all enormously for all their hard work over the year fundraising and to talk about the progress of the research taking place at the Bristol Laboratories led by Professor Moin Saleem.I'm so very grateful to you!!!

Hello Everyone, Over the summer, I applied for grants to help cover NeST’s core costs, ensuring our charity — Nephrotic Syndrome Trust — can continue supporting our wonderful community despite the challenges of reduced donations in today’s difficult financial climate.
 
I’m delighted to share that we’ve been awarded an ALL AWARDS grant of £19,500 from the National Lottery Community Fund for our project, NeST Together.
 
So thrilled to celebrate this fantastic news with you all! 

 

Thankyou SO much to all your wonderful family and friends who kindly gave very kind and generous donations!!! 

 Your talent is being sought everywhere now which is such a joy to see not only by me and your parents, but also all of us here at NeST!!! Thankyou so much again for all your hard work and dedication fundraising for Nephrotic Syndrome Trust ( NeST)!!!!

So thrilled you were gifted a wonderful day at Notts County game invitation recently too by David James staff - how exciting for you!!

Thankyou so much David James staff for this kindness to Hugo and the AMAZING gift donation,its very much appreciated indeed!!! 

I'm completely blown away by your very kind and generous donations!! Wow!!!!

 Thankyou enormously for supporting our lovely young artist Hugo -Rhy’s with his incredible fundraising efforts; it means the world to him and all of us within the NeST community as many of our loved ones endure this very debilitating kidney condition.