The NeST Community


Social Media

Sticking together is what NeST is all about. We want to unite people with NS and help them help each other through the good times and more challenging ones.

Now that you’ve found NeST, you’re never alone. Our Facebook page is a buzzing place full of people sharing their stories and experiences, building up a network of support that you can access any time.

Go on, introduce yourself and become part of the NeST community now! You can also keep up-to-date with everything NeST including the latest fundraising events and breakthroughs we’ve made in research by following us on Twitter or tweeting us @NSTrust.

Don’t be shy; we’d love to see you there!



Reach out to NeST and we’ll always aim to reassure you.

Whatever your concern, query or curiosity, whether you are managing Nephrotic Syndrome yourself or caring for a child or teen with the condition, we will strive to answer your questions by enlisting the help of our founder David Yearsley himself and other key members of our trust.

We keep the lines of communication open so we can all share our stories and experiences and motivate each other to remain positive and hopeful.

Email us

Local Support

We are currently setting up local support groups to offer advice and support to all NS sufferers and their friends and family.

If you would like to get involved and help run a support group near you then please don’t hesitate to get in touch. Between us we can make sure that nobody has to suffer alone.

Email us