Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.
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13 Dec, 2019
13 Dec, 2019
"Thalia is very fortunate to have three sets of amazing medical teams at three different local hospitals."
"I have been in remission for 11 years now and have just started a family of my own with the birth of my gorgeous little boy, Trent."
"My son Dylan was three and a half when he was diagnosed with Minimal Change Nephrotic Syndrome"
Let’s strive to beat nephrotic syndrome together and get everyone involved. The more we spread the message, the more we can raise the condition’s profile, invest more money into research and one day say we’ve found a cure.
© NeST Nephrotic Syndrome Trust 2019. Registered Charity No. 1107601
@NSTRUST |Dec 06
If you have Nephrotic Syndrome or your loved one,please don't be alone coping -join us for support!… https://t.co/t9bPRKhr6c
@NSTRUST |Dec 05
If you, or any family, or friends are thinking about giving our charity any donations for Nephrotic Syndrome Resear… https://t.co/ERjqY4Fbi9
@NSTRUST |Dec 05
@BristolRenal @Kidney_Research Great work Carl!Love the podcast! Well done Cade sharing your patient journey. Thank… https://t.co/ErBIqIkM1y
@NSTRUST |Dec 05
@RenalRadar How wonderful! Yes you are making long term difference to research which will impact on patients lives.… https://t.co/qWCK1D8f7d
@NSTRUST |Nov 08
Nottingham Roadshow 15 th of November.More places available if you wish to come and help us create mobile pages for… https://t.co/QZSkxJfLx3
@NSTRUST |Oct 30
First NeST Roadshow 15th of November.Please come and have your say on creating an app for Nephrotic Syndrome patien… https://t.co/MhxnM4A1Rw
@NSTRUST |Oct 21
First NeST Roadshow 15th of November.Please come and have your say on creating an app for Nephrotic Syndrome patien… https://t.co/RB5smdUo7q
@NSTRUST |Aug 30
More exciting news we have a new website launched with much information on it for Nephrotic syndrome patients and t… https://t.co/l3vMvk0kLm
@NSTRUST |Aug 30
More Exciting Research News!!! 🤩🤩 UK kidney biobank study hits the recruitment target of 3000 people in the UK. Th… https://t.co/f7G65XZFPk
@NSTRUST |Aug 16
A team of 12 are fundraising for Nephrotic Syndrome Trust by jumping out of a plane at 2.40pm TOMORROW at Hibaldsto… https://t.co/4atEYqFCLp
@NSTRUST |Aug 16
@queenofdialysis @BristolUni @Kidney_Research Bristol team are doing such great work -so proud of them!! So thrille… https://t.co/sR57qoPxLU
@NSTRUST |Aug 16
Hi Everyone,I would like share 🤩🤩some exciting research news!!! Thankyou SO much to Louise Farmer and Bristol rese… https://t.co/YxTr5Go8W2
@NSTRUST |Aug 15
@Kidney_Research @BristolRenal Wow!! Fantastic news! Well done & a massive thankyou to Louise Farmer & the Bristol… https://t.co/QqNOxIL6pw
@NSTRUST |Aug 11
Big thank you to @stefoster_ who will be skydiving next month to raise money for NeST For more info or to donate pl… https://t.co/gKPvgaFrMf
@NSTRUST |May 07
@twopan @Kidney_Research @kidneycareuk Thankyou for joining us Peter -Best Wishes Wendy Cook https://t.co/Gxqzj9t8IP😀
@NSTRUST |Mar 25
Hi Nephrotic Syndrome Patients & Families, Please join us at our Annual Patient Day on the 2nd of May at the Playho… https://t.co/N4fO2rAfIZ
@NSTRUST |Mar 14
@worldkidneyday Kidney Day' support research to save lives!! https://t.co/Gxqzj9t8IP A Very Big Thankyou to Rese… https://t.co/kToD0y4BBe
@NSTRUST |Feb 28
@RenalRadar Those with Nephrotic syndrome please consider signing up to RaDaR -Best wishes,Wendy
@NSTRUST |Feb 28
A Very Big Thankyou to 'Rare Disease UK' for the wonderful work you do to raise awareness of rare disease. We battl… https://t.co/oy8i6X2uBZ
@NSTRUST |Feb 20
@nick_fire1 @kidneydoc101 @RenalRadar @Thomas_Hiemstra Yes of course -please post to my address Wendy Cook,38,South… https://t.co/hsKRPhNoMa