Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.
Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.
'National Nephrotic Syndrome Patient Day' will be on the 2nd of May 2019 at the Playhouse Theatre,Nottingham. We will not be taking bookings until nearer the time and just so you are aware we will charging £10 per booking.
Thankyou So much to David Harris for nominating our charity!!! I've also been been given £225.00 from Battens a local solicitors childrens trust too. These funds will be put towards a young people's activity day, because so many of our young people enjoyed getting together at the labs for the science day.
The Nephrotic Syndrome Trust (NeST) was set up in 2005 by trustee David Yearsley whose son James suffers from the disease. Nephrotic Syndrome affects around 10,000 people in the UK.
Its main aims are to:
