Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.
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17 Mar, 2020
17 Mar, 2020
"I have been in remission for 11 years now and have just started a family of my own with the birth of my gorgeous little boy, Trent."
"My son Dylan was three and a half when he was diagnosed with Minimal Change Nephrotic Syndrome"
"Thalia is very fortunate to have three sets of amazing medical teams at three different local hospitals."
Let’s strive to beat nephrotic syndrome together and get everyone involved. The more we spread the message, the more we can raise the condition’s profile, invest more money into research and one day say we’ve found a cure.
© NeST Nephrotic Syndrome Trust 2019-2020. Registered Charity No. 1107601
@NSTRUST |Mar 17
Advice for renal patients from BAPN https://t.co/7KzEMbsOHj This will be updated,so keep checking. Also,renal centr… https://t.co/c32lKwwXQ9
@NSTRUST |Feb 19
Hi Everyone,We are thrilled at NeST to hear the latest research update from the research team at Bristol if you wis… https://t.co/fcRn7vbyrp
@NSTRUST |Feb 07
Our next app roadshow on 'World Kidney Day' 12th of March 2020 at the Bristol Research laboratories. 10.00am - 3.3… https://t.co/MhpzAAY81N
@NSTRUST |Feb 06
I still have two places left for the Bath Half Marathon 15th of March 2020 -if anyone wishes to undertake the race… https://t.co/eqVGbX8eCS
@NSTRUST |Jan 22
Our next app roadshow on 'World Kidney Day' 12th of March 2020 at the Bristol Research laboratories. 10.00am - 3.3… https://t.co/FtTmY63pZc
@NSTRUST |Jan 21
Hi Everyone, Thankyou so much to all the wonderful Staff at Ashton Gate Stadium at Bristol City Football Club who a… https://t.co/cuPY9R93XP
@NSTRUST |Jan 03
HAPPY NEW YEAR! If you haven't got a New Years resolution yet, how about setting a new challenge yourself?! Will… https://t.co/ag7HmXXRU8
@NSTRUST |Dec 06
If you have Nephrotic Syndrome or your loved one,please don't be alone coping -join us for support!… https://t.co/t9bPRKhr6c
@NSTRUST |Dec 05
If you, or any family, or friends are thinking about giving our charity any donations for Nephrotic Syndrome Resear… https://t.co/ERjqY4Fbi9
@NSTRUST |Dec 05
@BristolRenal @Kidney_Research Great work Carl!Love the podcast! Well done Cade sharing your patient journey. Thank… https://t.co/ErBIqIkM1y
@NSTRUST |Dec 05
@RenalRadar How wonderful! Yes you are making long term difference to research which will impact on patients lives.… https://t.co/qWCK1D8f7d
@NSTRUST |Nov 08
Nottingham Roadshow 15 th of November.More places available if you wish to come and help us create mobile pages for… https://t.co/QZSkxJfLx3
@NSTRUST |Oct 30
First NeST Roadshow 15th of November.Please come and have your say on creating an app for Nephrotic Syndrome patien… https://t.co/MhxnM4A1Rw
@NSTRUST |Oct 21
First NeST Roadshow 15th of November.Please come and have your say on creating an app for Nephrotic Syndrome patien… https://t.co/RB5smdUo7q
@NSTRUST |Aug 30
More exciting news we have a new website launched with much information on it for Nephrotic syndrome patients and t… https://t.co/l3vMvk0kLm
@NSTRUST |Aug 30
More Exciting Research News!!! 🤩🤩 UK kidney biobank study hits the recruitment target of 3000 people in the UK. Th… https://t.co/f7G65XZFPk
@NSTRUST |Aug 16
A team of 12 are fundraising for Nephrotic Syndrome Trust by jumping out of a plane at 2.40pm TOMORROW at Hibaldsto… https://t.co/4atEYqFCLp
@NSTRUST |Aug 16
@queenofdialysis @BristolUni @Kidney_Research Bristol team are doing such great work -so proud of them!! So thrille… https://t.co/sR57qoPxLU
@NSTRUST |Aug 16
Hi Everyone,I would like share 🤩🤩some exciting research news!!! Thankyou SO much to Louise Farmer and Bristol rese… https://t.co/YxTr5Go8W2
@NSTRUST |Aug 15
@Kidney_Research @BristolRenal Wow!! Fantastic news! Well done & a massive thankyou to Louise Farmer & the Bristol… https://t.co/QqNOxIL6pw