Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.
Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.
There are now thirteen NeST Facebook support groups (these are closed groups). The aim of the groups are for those with NS, family and carers to support each other in their local areas throughout the UK. Some of these groups have already met up face to face and trying to alternate venue's so to avoid some people travelling long distances every time.
Just a reminder Great North Run Ballot closes on the 4th of February if anyone wants to run for our charity.
The Nephrotic Syndrome Trust (NeST) was set up in 2005 by trustee David Yearsley whose son James suffers from the disease. Nephrotic Syndrome affects around 10,000 people in the UK.
Its main aims are to:
