Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.
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4 Nov, 2023
4 Nov, 2023
"I have been in remission for 11 years now and have just started a family of my own with the birth of my gorgeous little boy, Trent."
"My son Dylan was three and a half when he was diagnosed with Minimal Change Nephrotic Syndrome"
"Thalia is very fortunate to have three sets of amazing medical teams at three different local hospitals."
Let’s strive to beat nephrotic syndrome together and get everyone involved. The more we spread the message, the more we can raise the condition’s profile, invest more money into research and one day say we’ve found a cure.
© NeST Nephrotic Syndrome Trust 2019-2023. Registered Charity No. 1107601
@NSTRUST | 27 Jun 2022, 4:36pm
No mountain too high! Ben Moss raising awareness of Nephrotic Syndrome & much-needed funds for Research at Bristol University. Business sponsorship is needed for his VERY Brave challenge! Anyone help please contact Ben? Thankyou so much!
@NSTRUST | 19 Mar 2022, 10:59am
Hi Everyone, NeST Fundraiser tonight '90'S Revival Charity Show' Please join at 6PM on Youtube https://youtube.com/channel/UCx2r4ZfXVJv2EN4it9YiGIA or https://facebook.com/The90sRevival Donations can be made to this Justgiving page https://justgiving.com/fundrai.../the90srevival-nest2022 BIG THANKYOU to Dave & Team!
@NSTRUST | 11 Sep 2021, 9:16am
A Reminder -NeST App Virtual Zoom event tonight -7-8.30PM. I'm looking forward to seeing some of you tonight if you can make it! No registration is required just click on the link below(PLEASE MUTE YOUR SOUND WHEN JOINING)- https://bristol-ac-uk.zoom.us/j/3642539983?pwd=SnMzM2Vyb09pcFpvVndLZndUMldEUT09 See you soon!
@NSTRUST | 27 Jun 2021, 4:36pm
Good Luck from ALL of us at NeST & the Research Team to everyone who is taking part in the 'Great North Run' tomorrow!! Have a wonderful day!! Thankyou So for fundraising!X
@NSTRUST | 21 Jun 2021, 2:06pm
#nephroticsyndromeinformationday at @podocyte2021 31 July 10am-4pm - open to everyone – register https://bit.ly/3gzmvcs find out about latest #clinicaltrials #research #nutrition #exercise #wellbeing #patientstories #qa #nephroticsyndrome