Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Relapses - PREDNOS 2 Clinical Trial

Published: 13th Nov, 2018

Is your child a frequent relapser? Still looking for participants for this clinical trial which has been extended - 'PREDNOS 2​

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Charity Places for the Great North Run 2019!

Published: 2nd Oct, 2018

Please could you kindly email me [email protected] if you wish to have a place for the Great North Run 2019. I need numbers at the latest by 9AM12th of OCTOBER! IMPORTANT -last day to submit application for charity places!!!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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