Useful Links




Useful Links

FAQ's

FAQ's

We are dedicated to supporting patients and families with Nephrotic Syndrome.

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Kidney Research UK

Kidney Research UK

Kidney Research UK are a national charity dedicated to research that will lead to better treatments and cures for kidney disease.

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The Nephcure Foundation

The Nephcure Foundation

The Nephcure Foundation is the only non-profit organisation committed exclusively to support research seeking a cause for two potentially devastating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomeruloscierosis (FSGS), aiming to improve treatment and find a cure

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Renal Radar

Renal Radar

This is a registry of information on patients with rare kidney diseases. This information can be accessed by healthcare professionals and patients to allow them to share their knowledge

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Kids Kidney Research

Kids Kidney Research

This was set up by people with friends and family who were affected by kidney disease. They support the research into paediatric kidney disease

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The Academic Renal Unit

The Academic Renal Unit

The Academic Renal Unit aims to achieve excellence in research whilst benefiting patients with kidney diseases

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Kidney Care UK

Kidney Care UK

The charity was founded in 1975 by Elizabeth Ward, after her 13 year old son was diagnosed with kidney failure. The British Kidney Patient Association is a well established charity working to improve the quality of life for adults and children with kidney disease

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National Kidney Federation

National Kidney Federation

This is the National Kidney Federation (NKF) charity – a national kidney charity run by Kidney Patients for Kidney Patients

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Renal Association

Renal Association

Since being founded in 1950 the Renal Association has promoted and encouraged research into kidney diseases to ultimately improve the outcome for the patients

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NephcEurope

NephcEurope

NephcEurope is a European wide working patient-organization and fundraising foundation in the field of Nephrotic Syndrome.

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PatientView

PatientView

Sign up to patient view allows to access your results online. Ask you consultant,or community nurses at the hospital to enrol you and within a few weeks you will be given password access.PatientView shows your latest test results,letters and medicines, plus info about diagnosis and treatment. Set up alerts, monitor symptoms and download your records. You can view PatientView from anywhere you want and share your information with anyone you want.

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Medicines for Children

Medicines for Children

Medicines information leaflets cover many of the medicines that are prescribed or recommended to children by health professionals.

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Emeesy

Emeesy

On this website you will find information about all our services, such as what to expect if your child has to be admitted to Nottingham or how to find out about your local clinic.

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