We are dedicated to supporting patients and families with Nephrotic Syndrome.
infoKID provid information for parents and carers about kidney conditions in babies, children and young people.
Kidney Research UK
Kidney Research UK are a national charity dedicated to research that will lead to better treatments and cures for kidney disease.
Sign up to patient view allows to access your results online. Ask you consultant,or community nurses at the hospital to enrol you and within a few weeks you will be given password access.PatientView shows your latest test results,letters and medicines, plus info about diagnosis and treatment. Set up alerts, monitor symptoms and download your records. You can view PatientView from anywhere you want and share your information with anyone you want.
This is a registry of information on patients with rare kidney diseases. This information can be accessed by healthcare professionals and patients to allow them to share their knowledge
Kids Kidney Research
This was set up by people with friends and family who were affected by kidney disease. They support the research into paediatric kidney disease
The Academic Renal Unit
The Academic Renal Unit aims to achieve excellence in research whilst benefiting patients with kidney diseases
Kidney Care UK
The charity was founded in 1975 by Elizabeth Ward, after her 13 year old son was diagnosed with kidney failure. The British Kidney Patient Association is a well established charity working to improve the quality of life for adults and children with kidney disease
National Kidney Federation
This is the National Kidney Federation (NKF) charity – a national kidney charity run by Kidney Patients for Kidney Patients
Since being founded in 1950 the Renal Association has promoted and encouraged research into kidney diseases to ultimately improve the outcome for the patients
NephcEurope is a European wide working patient-organization and fundraising foundation in the field of Nephrotic Syndrome.
The Nephcure Foundation
The Nephcure Foundation is the only non-profit organisation committed exclusively to support research seeking a cause for two potentially devastating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomeruloscierosis (FSGS), aiming to improve treatment and find a cure
Medicines for Children
Medicines information leaflets cover many of the medicines that are prescribed or recommended to children by health professionals.
On this website you will find information about all our services, such as what to expect if your child has to be admitted to Nottingham or how to find out about your local clinic.
Facebook Support Group
We have 15 NeST support groups around the UK all are closed Facebook groups.Please join one local to your area. Some members meet face to face socially. we are looking for more people to set up groups, if you are interested please contact me firstname.lastname@example.org.
North East (UK) NeST Nephrotic Syndrome Support Group
NeST Support group North Wales, Chester, Merseyside
Greater Manchester NeST (Nephrotic Syndrome Trust)
NeST Midlands Support Group
NeST East Anglia
NeST Thames Valley
Bradford Nephrotic Syndrome Support Group NeST
NeST Nephrotic Syndrome Trust Scotland
NeST Nephrotic Syndrome Trust Teesside And Yorkshire Fundraisers
NeST Nottinghamshire and Lincolnshire
NeST South West Support Group
Nephrotic Syndrome Friends - NeST UK South East
NeST North West
NeST London Support Group
NeST Nephrotic Syndrome Trust Northern Ireland
NeST South Wales Support group