If you’ve got Nephrotic Syndrome, the filters in one or both of your kidneys are ‘leaky’ which results in the transfer of protein from your blood to your urine. Normally, urine doesn’t contain any protein but people with NS develop Ôproteinuria’ which simply means there is protein in your pee.
Your body knows there’s something wrong when it realises it’s peeing protein so it reacts by retaining water, which may lead to:
If left untreated, Nephrotic Syndrome can develop into kidney failure meaning you may need a kidney transplant. Transplants are normally successful but there is still a small chance that the condition could return. That’s why it’s so vital to help us find a cure.
You might be feeling like the only person in the world that has Nephrotic Syndrome. After all, people who aren’t affected have generally never even heard of it. That’s why we’re striving to teach people about it and make sure everyone knows just how important it is that we find a cure.
Nephrotic Syndrome mostly affects children but it can go on to develop in teens and adults too. Some people will grow out of it and some people might well grow into it as they get older. It’s worth noting that the majority of adults who develop this condition will usually have an underlying disease so it’s important to know all the facts about both.
Your doctor will have assessed how well your kidneys are clearing waste products from your bloodstream by performing either a urine or blood test. Both may have been done to be absolutely sure.
They will hopefully have then explained the condition to you and the different treatments that can help you get better from the inside out.
It’s easy to feel overwhelmed and on information overload in that kind of situation though, so here’s a simple breakdown of the current treatments available: