Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

'Amazing Water Wipeout Teams'!!!!

Published: 14th Aug, 2018

In July's heatwave Matt,Louise and Emily,Izzie and Becka raised the AMAZING sum of £1,489.00..and counting as more cash donations coming in!!! Well done Water Wipeout Team!!s

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Sacriston Fete - Saturday 11th of August -don't miss it!!!

Published: 8th Aug, 2018

Please go along and support Rachel Gardiner and Youth Project Team!! They have worked incredibly hard to put together exciting attractions and competitions to support Nephrotic Syndrome Research!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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