NeST News

Here’s where we’ll broadcast the latest NeST news from major breakthroughs in research to acknowledgement in the media. Just think of it as a virtual bulletin board, complete with digital snippets allowing you to catch up on the groundbreaking advances, extraordinary fundraising stories and most significant headlines about Nephrotic Syndrome.

Remember, since NS is a relatively unknown condition, the more our message is spread, the greater our chances are at of one day discovering a cure that could help thousands of people managing the condition to enjoy a better quality of life.

Latest NeST News & Events

Important Public Health Study -SONG Survey

Published: 26th Feb, 2019

Please can I ask you to consider doing this survey, https://sydneypublichealth.au1.qualtrics.com/…/SV_djzDXYqzI… which is an international effort to try and understand what are the important outcomes for patients, carers and nurses/doctors when we test a new drug in a clinical trial in glomerular disease.

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Gary's Beautiful Christmas Lights Display to support Nephrotic Syndrome Research!!

Published: 25th Feb, 2019

A Very Big Thankyou from NeST & Bristol Research Team to Gary Ilminster for raising the 'Amazing' sum of £612.84 from your beautiful Christmas lights display at your home for Nephrotic Syndrome Research! Everyone thoroughly enjoyed it!! You put so much effort into it, bringing lots of joy to your neighbourhood too!!!

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Great way to raise money for NeST please consider the 'Kiltwalk'!

Published: 25th Feb, 2019

If you are looking for a wonderful event to join in and raise lots of money for Nephrotic Syndrome Research please consider the Kiltwalk Event which take place in Glasgow,Aberdeen,Edinburgh and Dundee. https://www.thekiltwalk.co.uk/charities/…

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