It was really kind of you to request donations from your guests to celebrate your Golden Wedding Anniversary rather than receiving presents. Please thank all your wonderful family and friends for their kindness and continued help to find new medicine for your young grand-daughter Lucie and many thousands of other sufferers around the world!
Carl has'n't got the final figure in quite yet, but has raised the AMAZING sum of approximately £1,450 !!! Wow!! Well done Carl!!! Thankyou So much to all your wonderful sponsors who generously donated,it's much appreciated indeed
(These are closed groups). The aim of the groups are for those with NS, family and carers to support each other in their local areas throughout the UK. Some of these groups have already met up face to face and trying to alternate venue's so to avoid some people travelling long distances every time.