NeST News

Here’s where we’ll broadcast the latest NeST news from major breakthroughs in research to acknowledgement in the media. Just think of it as a virtual bulletin board, complete with digital snippets allowing you to catch up on the groundbreaking advances, extraordinary fundraising stories and most significant headlines about Nephrotic Syndrome.

Remember, since NS is a relatively unknown condition, the more our message is spread, the greater our chances are at of one day discovering a cure that could help thousands of people managing the condition to enjoy a better quality of life.

Latest NeST News & Events

A Very Big Thankyou to Richard & Carol Clarke for the wonderful donation of £175.00

Published: 22nd May, 2019

It was really kind of you to request donations from your guests to celebrate your Golden Wedding Anniversary rather than receiving presents. Please thank all your wonderful family and friends for their kindness and continued help to find new medicine for your young grand-daughter Lucie and many thousands of other sufferers around the world!

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Congratulations and a A Very Big Thankyou to Carl Reilly from NeST & the research team who bravely skydived last weekend!!!!!

Published: 18th May, 2019

Carl has'n't got the final figure in quite yet, but has raised the AMAZING sum of approximately £1,450 !!! Wow!! Well done Carl!!! Thankyou So much to all your wonderful sponsors who generously donated,it's much appreciated indeed

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NeST Facebook support groups

Published: 11th May, 2019

(These are closed groups). The aim of the groups are for those with NS, family and carers to support each other in their local areas throughout the UK. Some of these groups have already met up face to face and trying to alternate venue's so to avoid some people travelling long distances every time.

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