NeST News

Here’s where we’ll broadcast the latest NeST news from major breakthroughs in research to acknowledgement in the media. Just think of it as a virtual bulletin board, complete with digital snippets allowing you to catch up on the groundbreaking advances, extraordinary fundraising stories and most significant headlines about Nephrotic Syndrome.

Remember, since NS is a relatively unknown condition, the more our message is spread, the greater our chances are at of one day discovering a cure that could help thousands of people managing the condition to enjoy a better quality of life.

Latest NeST News & Events

'Supercalifragilisticexpialidocious' Fundraising!!!!

Published: 24th Dec, 2018

NeST Trustee's and I & Professor Moin Saleem & the Research Team at Bristol would like to Thankyou Very Very much for your 'Supercalifragilisticexpialidocious' Fundraising!!!! This year £100,000 was raised for researchers -AMAZING!!!!!!!!! Thankyou Enormously for all your hard work fundraising!!!

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Simplyhealth Great North Run General Ballot

Published: 19th Dec, 2018

Just to let you know that the Simplyhealth Great North Run general ballot will open Wednesday 2nd January at 12:00 and close Monday 4th February at 13:00. Runners will be notified within 5 days of the ballot closing whether they have been successful or not.

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Date for your Diaries - 'National Nephrotic Syndrome Patient Day'

Published: 13th Dec, 2018

'National Nephrotic Syndrome Patient Day' will be on the 2nd of May 2019 at the Playhouse Theatre,Nottingham. We will not be taking bookings until nearer the time and just so you are aware we will charging £10 per booking.

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