National Information Day for those living with Nephrotic Syndrome which is taking place on Friday the 26th of April 2024. Registration(10 -10.30 am)
Saturday, April 13, 2024
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PLEASE JOIN US! I would love to see more people attend this event -not many people signed up so far -I need to let venue owners know catering numbers very soon!! (PLEASE READ ALL OF THIS POST -I have managed to secure travel assistance grants (£3.5K!)for any of you in need of help so you make the event and also for the bowling evening the night before for ages 30yrs and younger). You can now book your place for the National Information Day for those living with Nephrotic Syndrome which is taking place on Friday the 26th of April 2024. (10 -10.30 am registration) and we aim to finish around 3.30 pm after a Q & A session.- at the 'Norwegian Church Arts Centre' at Cardiff Bay.
Free lunch and refreshments.
Please email me wendy@nstrust.co.uk with any dietary requirements.
If your child is attending please let me know their name and age.
Please note I have been promised grants from 'Kidney Care UK' & Popham Kidney Support'(Wales charity) to cover people's travel if needed. There is a limited amount so reimbursements will be paid on a first-come first-served first-served basis after the event. Receipts need to be kept. If you need assistance please email me.
Cade Morant and I are organising a bowling evening and a meal for the NeST Young Ambassadors the night before on the 25th of April. We are now inviting young people under the age of 18 years(with parental consent). Their meal and bowling will be paid out of a grant. If anyone under 13 years old wishes to join you are welcome, but would need a parent/carer to accompany them(Sorry unable to pay for parent's meals & bowling, only helpers!) Meals, bowling & travel will be covered out of a grant for those aged 30 years and younger. I also can cover a room booking at the local Premier Inn room for 18 years to 30-year-olds.(I need to know ASAP TO MAKE BOOKINGS -DEADLINE APRIL THE 5TH!).
Any questions about the day, please do ask.
I hope some of you can make it!
Best wishes,
Wendy