Hi Everyone - To all those who are new to NS,just so you are aware as an adult, or parent/carer of a child with Nephrotic Syndrome you can check blood results online and flag up any concerns with your renal teams. Also, it shows letters and medicines, plus info about diagnosis and treatment which you share with others too.Many hospitals throughout the UK have this facility, or it will be installed soon.To access you need a username and password given to you. Ask your consultant and community nurses for access. I've found this very helpful over the years following my son's results here's the link - https://www.patientview.org/#/
Anyone having problems -
please call the Helpdesk on 0117 414 8158 or email [email protected] with details of the issue(s).
Patient view team said this to me -Via the Facebook page we can provide some support, but not all, so it is recommended being in touch with Helpdesk directly and I'm sure they'll be able to provide further advice