NeST News

Twins Casey and Thalia raise vital funds for Nephrotic Syndrome Research at their Birthday Party!!!!!!!!!


Published: 28th February, 2018 @ 5:21pm

The idea to fo ask for donations at their birthday party was Casey and Thalia's joint idea to help Thalia's kidneys get better! Proud Mum Rachel explains in these following words -

Since August 2016 after first diagnosis our lives hasn't been the same - a rollercoaster is an understatement I am so thankful to have found this group on day 2 of this journey especially as a single parent of twins!

Chatting to Wendy on that day reassured me and reminded me to take it one day at a time - Wendy thank you from the bottom of my heart for all your ongoing support

I am very blessed to have an amazing medical team around us and their support thoughout the our ns journey

We have had numerous hospital stays and A & E visits and last year the twins decided that they didn't want to have a present at their birthday party and instead they would like a donation to be made to NeST instead to help get TT's kidneys better

Today, we had their birthday party and I am pleased to announce that the twins have raised £130 via their birthday cards along with numerous small donations made online on their behalf

NeST & the Research Team are very touched by your wonderful kindness!! THANKYOU SO MUCH!!! HAPPY BIRTHDAY Thalia & Casey!! XXX