Grant from Retrophin awarded to help those affected by Covid-19
Saturday, August 15, 2020
NeST is not normally in a postion to give out financial help to individuals as this is not part of it's governing constitution. However due to a very kind gift by Retrophin Inc, a small number of grants were able to be given due to the Covid-19 crisis.
Retrophin are a biopharmaceutical company focused on developing new drugs/therapies for rare diseases to find a cure and this includes Nephrotic Syndrome. One such drug is called sparsentan, a product candidate in late-stage development for focal segmental glomerulosclerosis (FSGS) and IgA nephropathy (IgAN), rare disorders characterized by progressive scarring of the kidney often leading to end-stage renal disease. Research in additional rare diseases is also underway, including partnerships with leaders in patient advocacy and government .
Very kindly the company gave a one off gift of £1750 to help those affected significantly due to Covid-19. Sadly so many of our community are of course affected and it is impossible to help all.
With our grateful thanks to Retrophin and especially those who received help www.retrophin.com