Latest News




Grant from Retrophin awarded to help those affected by Covid-19

Saturday, August 15, 2020

NeST is not normally in a postion to give out financial help to individuals as this is not part of it's governing constitution. However due to a very kind gift by Retrophin Inc, a small number of grants were able to be given due to the Covid-19 crisis.

Retrophin are a biopharmaceutical company focused on developing new drugs/therapies for rare diseases to find a cure and this includes Nephrotic Syndrome. One such drug is called sparsentan, a product candidate in late-stage development for focal segmental glomerulosclerosis (FSGS) and IgA nephropathy (IgAN), rare disorders characterized by progressive scarring of the kidney often leading to end-stage renal disease. Research in additional rare diseases is also underway, including partnerships with leaders in patient advocacy and government .

Very kindly the company gave a one off gift of £1750 to help those affected significantly due to Covid-19. Sadly so many of our community are of course affected and it is impossible to help all.

With our grateful thanks to Retrophin and especially those who received help   www.retrophin.com

Go back






Charity Web Design by Polkadot Agency