NeST News

Here’s where we’ll broadcast the latest NeST news from major breakthroughs in research to acknowledgement in the media. Just think of it as a virtual bulletin board, complete with digital snippets allowing you to catch up on the groundbreaking advances, extraordinary fundraising stories and most significant headlines about Nephrotic Syndrome.

Remember, since NS is a relatively unknown condition, the more our message is spread, the greater our chances are at of one day discovering a cure that could help thousands of people managing the condition to enjoy a better quality of life.

Latest NeST News & Events

'National Nephrotic Syndrome Day 2018'

Published: 7th Mar, 2018

Patient Day is being held at Leeds Museum on May the 24th from 10.30am - 3.30pm Lunch and refreshments will be available -no charge.

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Twins Casey and Thalia raise vital funds for Nephrotic Syndrome Research at their Birthday Party!!!!!!!!!

Published: 28th Feb, 2018

A Very Big Thankyou to Thalia and Casey for their INCREDIBLE KINDNESS fundraising to find a cure for Thalia!!! NeST and the Research team are most touched indeed!!!

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Jennifer's Amazing Fundraising!!!!!

Published: 28th Feb, 2018

A Very Big Thankyou to Jennifer Michaela -you a lovely ambassador for our charity -keep spreading the word about our charity!!! Jennifer has been very busy for us, I'm so grateful to her!!! Thankyou so much to you for your 'INCREDIBLE' support, time and energy raising awareness of this cruel and debilitating kidney disease Nephrotic Syndrome and our charity!!! Thankyou very much indeed for raising over £400.00 raised on your Just giving page!!

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