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PLEASE JOIN US! I would love to see more people attend this event -not many people signed up so far -I need to let venue owners know catering numbers very soon!! (PLEASE READ ALL OF THIS POST -I have managed to secure travel assistance grants (£3.5K!)for any of you in need of help so you make the event and also for the bowling evening the night before for ages 30yrs and younger). You can now book your place for the National Information Day for those living with Nephrotic Syndrome which is taking place on Friday the 26th of April 2024. (10 -10.30 am registration) and we aim to finish around 3.30 pm after a Q & A session.- at the 'Norwegian Church Arts Centre' at Cardiff Bay.

Thankyou SO much to everyone who kindly baked cakes and everyone who bought cakes and gave very generous donations!! So kind of you all!!!
 
My very best wishes,
Wendy
 

Hi Everyone, Finally Sandie Jenkins and I have great pleasure in letting you know Nephrotic Syndrome UK App is now LIVE on Apple and Google Play for you to download. For more information on the app click on this link - https://nstrust.co.uk/news-and-events/nephrotic-syndrome-app
 
Our hope is this app will help support you with the daily management of your condition. The whole process of developing this app and funding this app has run into thousands of pounds and man-hours to develop with a lengthy assessment and approval by NHS Digital & NHS England!! Please kindly spread the word about this app with your different Facebook groups and renal centres.
 

Hi Everyone, Today on ‘World Kidney Day’ let’s celebrate and give thanks for the important research undertaken by the Bristol team of researchers and globally too! Amazing progress is being made https://nstrust.co.uk/who-we-are/research and I with you look forward to hearing more exciting research developments for our loved ones in these rapidly advancing technologies times we live in. Please kindly continue to give your support to the research team so new more effective treatments and medicine can be a reality for loved ones. Thankyou to all of you who kindly support our charity with your regular donations and continued fundraising, it’s much appreciated indeed!
 

Please give a BIG SHOUT OUT to our lovely Hugo as he continues to fundraise for Nephrotic Syndrome Research!!! Yesterday he raised the impressive sum of £210.00 from a charity book sale!!! Hugo collected the proceeds from Lisa at his local Tesco!!!!!
 
 

Thankyou SO much for all your hard work from all of us at NeST and the Research Team!!!
 
Best Wishes,
 
Wendy

A Very Big Thankyou to Russell Weisberg for your very kind and generous donation of £36.00 via CAF (Charities Aid Foundation) https://www.cafonline.org/ to our charity for Nephrotic Syndrome Research!!

A Very Big Thankyou from NeST & the Research Team to Poppy and Gracie for kindly raising awareness of Nephrotic Syndrome and fundraising on Rare Disease Day yesterday at your school!!! Thankyou SO much for raising the amazing sum of £170.00 by selling some NeST merchandise and requesting donations!!

Thankyou so much to your school for kindly letting you undertake this awareness day and for all the wonderfully generous donations from your fellow students and staff members; your help and support are much appreciated indeed!!

Thankyou SO much to all the staff, families and residents at Loxley House for your kind and generous donations and the wonderful heartwarming support from Councillor Cheryl Bernard!!!