Latest News

Congratulations!!!! You've done it!!! Well done Owen!!!!! So pleased you enjoyed yourself! Thankyou millions for bravely skydiving for NeST!! Fabulous photo's! 

Thankyou SO much for raising an AMAZING £2,000 for Nephrotic Syndrome Research!!!

Thankyou SO much Freddie & Manu Tuilagi for your support to our charity,it's much appreciated indeed!!!

Hi Everyone,Just to remind you all and any new members there is a young members group known as 'NeST Young Ambassadors'. Lovely group of young people 16 -25yrs from different parts of the UK. Closed group.Lead ambassador Cade Morant; Sam DA and I are admins too.

https://www.facebook.com/groups/1622024624601038/

One of our NeST family sadly passed away two weeks ago.We were all very fond of Richard; he will be remembered as a real character with a fabulous sense of humour which kept our all our spirits up when days were tough living with Nephrotic Syndrome.Richard took many photo's of 'NeST Ted' getting up to lots of antics around his home. He will also be remembered as a person with a generous heart,giving away one of his camera's to a young girl with NS to complete her photography course!!

A Very Big Thankyou to Genevieve McMahon who completed a 2.6 jump challenge =22,000 skips over 40 days and smashed her target and raised the Amazing sum of £596!!

Phew!! that's a lorra skips!!!

A Very Big Thankyou to Jack and mum Sarah Pell for their unique fundraiser over lockdown! Sarah cut her son's hair into a mohawk. I must say it looks fabulous -great cutting skills!!

A Very Big Thankyou to Linda Hicks for your £50 cheque donation I received today from your memorial fishing day you held with your family in memory of your late husband.

NeST is not normally in a postion to give out financial help to individuals as this is not part of it's governing constitution. However due to a very kind gift by Retrophin Inc, a small number of grants were able to be given due to the Covid-19 crisis.