Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Reviewing Blood Results online

Published: 28th Jan, 2019

Ask your consultant and community nurses for access. I've found this very helpful over the years following my son's results here's the link - https://www.patientview.org/#/

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A Very Big Thankyou to Simone Brown and her wonderful Lindy Hop Dancers!

Published: 28th Jan, 2019

A Very Big Thankyou to Simone Brown and her wonderful Lindy Hop Dancers for their continued support to our charity raising the fantastic sum of £300 for Nephrotic Syndrome Research!! So grateful to everyone who has made generous donations at your recent tea dance this month,most kind indeed!! Happy Dancing 2019!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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