Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

Congratulations and a Very Big Thankyou from NeST & the Research Team to John Mawer!

Published: 4th Jan, 2019

John Mawer for kindly took part in the Orsted 10K'Great Grimsby Fun and raising an AMAZING £2,570.00 for Nephrotic Syndrome research!!!

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A Very Big Thankyou to Julie Schneider for organising a very successful Christmas party.

Published: 4th Jan, 2019

A fantastic total sum of £368 was raised for Nephrotic Syndrome Research!!! Please thank all your wonderful family and friends who supported the evening!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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