Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

A Very Big Thankyou to Rachel Gardiner,family and friends!!! Wow Amazing Fundraising!!!

Published: 28th Oct, 2018

Your last pennies are in from your last fundraising events 'Sacriston Fun Day' and the Great North Run making your grand fundraising total to date a staggering £4656!!!

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A Very Big Thankyou to (John Blakey -'Team Betsy') mum's friend Sandra and members of Houghton -Le -Spring Methodist Church

Published: 28th Oct, 2018

A Very Big Thankyou to (John Blakey -'Team Betsy') mum's friend Sandra and members of Houghton -Le -Spring Methodist Church for raising £145.00 proceeds from a coffee morning and other fundraising activities for Nephrotic Syndrome Research,most grateful to you all from NeST & Bristol Research team!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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