Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Graham & Mary Higton Tandem Cycle Ride from Land's End to John O' Groats

Published: 29th Jun, 2016

Congratulations to Graham & Mary Higton who bravely completed their tandem cycle ride from Land's End to John O' Groats on June the 26th,raising an AMAZING £3,500 !!!

Read more

Jonathan Waller is feeling on 'Top of the World'!!!!

Published: 27th Jun, 2016

Wow!!! Congratulations to Jonathan who has bravely completed the 'Fan Dance' Event. Second challenge completed this year for on behalf of his nephew Charlie.

Read more


Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more