Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

The Big Give Christmas Challenge, the UK's biggest online match funding campaign!!

Published: 19th Jul, 2017

Would you, or your company be able to help raise vital funds for our project 'NeST Community Networking Project' please?

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A Very Big Thankyou to everyone who took part in the 10k Woolacombe Beach Run

Published: 19th Jul, 2017

Ilfracombe Rotary Clubs raised a fantastic sum of £1,500!!!! -thankyou so much for all your hard work!!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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