Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

Mandy Russo raises an AMAZING sum of £600 from her wonderful fundraising events!!

Published: 24th Dec, 2017

A Very Big Thankyou for all your hard work organising a Children's Christmas Party & Pre - Christmas Salon Events,plus AMAZING Hampers!!!

Read more

Crazy Clubbathon 2017 Fundraiser with Gemma & Team!!!

Published: 24th Dec, 2017

Danced and exercised the night away with raffle and stalls to raise a wonderful sum of £211.81!!

Read more

Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more