Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

A Very Big Thankyou to Jennifer Michaela for her wonderful support for NeST!!!

Published: 28th Jul, 2018

Jennifer has kindly held holding car boot sales,organising a very successful 'Royal Wedding Party with a German Twist' in May and through the many beauty pageants she is involved in by raising awareness & collecting kind donations of partcipants and members of the public for our charity 'Nephrotic Syndrome Trust'

Read more

Congratulations to Lucy and Ceri Bravely undertaking their skydives!!!

Published: 28th Jul, 2018

Thankyou SO much for raising vital funds for Nephrotic Syndrome Research from NeST and the Research Team and and raising an Amazing sum for both of your chosen charities!!!(For NEST - £1,200 exactly)

Read more

Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more