Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Great way to raise money for NeST please consider the 'Kiltwalk'!

Published: 25th Feb, 2019

If you are looking for a wonderful event to join in and raise lots of money for Nephrotic Syndrome Research please consider the Kiltwalk Event which take place in Glasgow,Aberdeen,Edinburgh and Dundee. https://www.thekiltwalk.co.uk/charities/…

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Would you like a t-shirt or vest top for your event please?

Published: 25th Feb, 2019

I'm putting an order together for vest tops & tshirts for those of you partcipating in running, or other events over the next few months including those who are undertaking the Great North run in September.Vest tops and t-shirts are free if you are fundraising.

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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