Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.
Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.
Please can I ask you to consider doing this survey, https://sydneypublichealth.au1.qualtrics.com/…/SV_djzDXYqzI… which is an international effort to try and understand what are the important outcomes for patients, carers and nurses/doctors when we test a new drug in a clinical trial in glomerular disease.
A Very Big Thankyou from NeST & Bristol Research Team to Gary Ilminster for raising the 'Amazing' sum of £612.84 from your beautiful Christmas lights display at your home for Nephrotic Syndrome Research! Everyone thoroughly enjoyed it!! You put so much effort into it, bringing lots of joy to your neighbourhood too!!!