Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Morgan the Superhero for NeST!!!

Published: 2nd Dec, 2018

Morgan bravely completed the Superhero Winter wheels event! Not just once,but twice over!!! He was supposed to cycle 5km, but did 10km with his 5 year old brother. So far Morgan has kindly raised £250 for NeST!!

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We now have a 'NeST Media and Advertising Co-ordinator'

Published: 30th Nov, 2018

I would like to make you all aware that trustees and I asked Rachael Ravenhill recently to be our charity's NeST Media and Advertising Co-ordinator due to her amazing creative talent putting together the wonderful video she produced earlier in the year which many of you and your children contributed too.

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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