Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

A Very Big Thankyou to Richard & Carol Clarke for the wonderful donation of £175.00

Published: 22nd May, 2019

It was really kind of you to request donations from your guests to celebrate your Golden Wedding Anniversary rather than receiving presents. Please thank all your wonderful family and friends for their kindness and continued help to find new medicine for your young grand-daughter Lucie and many thousands of other sufferers around the world!

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Congratulations and a A Very Big Thankyou to Carl Reilly from NeST & the research team who bravely skydived last weekend!!!!!

Published: 18th May, 2019

Carl has'n't got the final figure in quite yet, but has raised the AMAZING sum of approximately £1,450 !!! Wow!! Well done Carl!!! Thankyou So much to all your wonderful sponsors who generously donated,it's much appreciated indeed

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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