Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.
Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.
I would like to make you all aware that trustees and I asked Rachael Ravenhill recently to be our charity's NeST Media and Advertising Co-ordinator due to her amazing creative talent putting together the wonderful video she produced earlier in the year which many of you and your children contributed too.