Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.
Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.
It was really kind of you to request donations from your guests to celebrate your Golden Wedding Anniversary rather than receiving presents. Please thank all your wonderful family and friends for their kindness and continued help to find new medicine for your young grand-daughter Lucie and many thousands of other sufferers around the world!
Carl has'n't got the final figure in quite yet, but has raised the AMAZING sum of approximately £1,450 !!! Wow!! Well done Carl!!! Thankyou So much to all your wonderful sponsors who generously donated,it's much appreciated indeed