Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Important Public Health Study -SONG Survey

Published: 26th Feb, 2019

Please can I ask you to consider doing this survey, https://sydneypublichealth.au1.qualtrics.com/…/SV_djzDXYqzI… which is an international effort to try and understand what are the important outcomes for patients, carers and nurses/doctors when we test a new drug in a clinical trial in glomerular disease.

Read more

Gary's Beautiful Christmas Lights Display to support Nephrotic Syndrome Research!!

Published: 25th Feb, 2019

A Very Big Thankyou from NeST & Bristol Research Team to Gary Ilminster for raising the 'Amazing' sum of £612.84 from your beautiful Christmas lights display at your home for Nephrotic Syndrome Research! Everyone thoroughly enjoyed it!! You put so much effort into it, bringing lots of joy to your neighbourhood too!!!

Read more


Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more