Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Jennifer's Amazing Fundraising!!!!!

Published: 28th Feb, 2018

A Very Big Thankyou to Jennifer Michaela -you a lovely ambassador for our charity -keep spreading the word about our charity!!! Jennifer has been very busy for us, I'm so grateful to her!!! Thankyou so much to you for your 'INCREDIBLE' support, time and energy raising awareness of this cruel and debilitating kidney disease Nephrotic Syndrome and our charity!!! Thankyou very much indeed for raising over £400.00 raised on your Just giving page!!

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Relapses - PREDNOS 2 Clinical Trial

Published: 16th Feb, 2018

Does your child relapse often? Then you may be interested in the PREDNOS 2 trial If you are interested please contact your child's consultant.

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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