Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

NeST Event - 'Christmas in Summer' in Redcar- 19th of August!!

Published: 24th Jul, 2019

'Christmas in Summer' in Redcar- 19th of August!! Don't miss it! It was a big hit last year!! Christmas comes twice a year for NeST community in Redcar! They are all so well behaved!!!! Going to be a bigger event this year. Santa and his grotto,mince pies and raffle and much more,see poster below.Put the date in your diaries!!

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Memorial Fishing Day in memory of Linda Hicks husband

Published: 24th Jul, 2019

​A Very Big Thankyou to Linda Hicks and family from NeST & the Research Team for raising the wonderful sum of £105.00 from your recent family memorial fishing day in memory of your husband!! Sounds like you all had a very special day and lots of fun holding the fishing competition and BBQ. You say 40 members of your family took part–Wow!! Well done to the winner of the juniors Ellen Hicks and adult winners 1st place -Ryan Hicks, 2nd -Keith Brown, 3rd Gemma & Sam Kershaw

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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