Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

NURTuRE RECRUITMENT - a very important enterprise for all renal patients!

Published: 13th Dec, 2018

The Research team need your help please. Please share amongst your groups this is a very important enterprise for all renal patients! See sites currently recruiting below.

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Samantha Crossan's Wonderful Charity Night for NeST!

Published: 13th Dec, 2018

A Very Big Thankyou to Samantha Crossan for organising a wonderful charity night with family and friends;enjoyed by all with disco and auction and head shaving which raised the fantastic total of £2,480,00!!!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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