Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

'National Nephrotic Syndrome Day 2018'

Published: 7th Mar, 2018

Patient Day is being held at Leeds Museum on May the 24th from 10.30am - 3.30pm Lunch and refreshments will be available -no charge.

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Twins Casey and Thalia raise vital funds for Nephrotic Syndrome Research at their Birthday Party!!!!!!!!!

Published: 28th Feb, 2018

A Very Big Thankyou to Thalia and Casey for their INCREDIBLE KINDNESS fundraising to find a cure for Thalia!!! NeST and the Research team are most touched indeed!!!

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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