Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Super low salt ebook being sold by Samantha on Amazon -please take a look!!

Published: 14th Aug, 2018

Hi Everyone, NeST has just received the wonderful sum of £42.00 from a lovely young lady who is an author of a low salt cookbook.Some of the proceeds will continue to be kindly donated in the future too. Please find mum's message posted below from our other facebook page - Samantha, my daughter, has sold 21 of her ebooks so will be donating $42 to NeST ($2 per ebook). Let's help make this more! You can purchase her ebook through Amazon here..... Are you wanting ideas for low salt eating? My daughter, Samantha, needed to eat low salt when diagnosed with nephrotic syndrome earlier this year. She has put together this ebook to help others. Of each sale $2 goes to NeST, the Nephrotic Syndrome Trust researching to find a cure. She would love your support in purchasing a copy

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Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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