Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

Simplyhealth Great North Run General Ballot

Published: 19th Dec, 2018

Just to let you know that the Simplyhealth Great North Run general ballot will open Wednesday 2nd January at 12:00 and close Monday 4th February at 13:00. Runners will be notified within 5 days of the ballot closing whether they have been successful or not.

Read more

Date for your Diaries - 'National Nephrotic Syndrome Patient Day'

Published: 13th Dec, 2018

'National Nephrotic Syndrome Patient Day' will be on the 2nd of May 2019 at the Playhouse Theatre,Nottingham. We will not be taking bookings until nearer the time and just so you are aware we will charging £10 per booking.

Read more

Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more