Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.

Latest NeST News & Events

'Three Peaks Challenge!!'

Published: 14th Aug, 2016

Chris Skrabski & Team bravely undertook the Three Peaks Challenge in 24 hours!!!!!!! Fantastic Team!!

Read more

Will's Amazing Raffle & Georgia's Gorgeous Cupcakes!!!

Published: 14th Aug, 2016

A Very Big Thankyou to Tina,Georgia and Will Featherstone and family friend Kerrie Sexton for their continued support to NeST. Will's school raised an AMAZING £200 from a raffle.

Read more

Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
Find out more

I want to help NeST run a support group in my area!

Find out more