Welcome to NeST - the voice of Nephrotic Syndrome

We’re bringing Nephrotic Syndrome out of hiding.

Shining a spotlight on it so that more people in more places can learn what it is, who it affects and how they can help.

So what can I find here?

Here you’ll find a warm, friendly hub of knowledge, research and support, helping you and your loved ones gain everything you need to know about living with and managing Nephrotic Syndrome while raising awareness and the much-needed donations that will one day enable us to say finally, we’ve found a cure.

Knowing you, a family member or friend has Nephrotic Syndrome can be scary. But what’s even scarier is not knowing much about it. That’s why we built this NeST - to give you all the resources you need to face Nephrotic Syndrome with confidence and hope.


Latest NeST News & Events

Date for your Diaries - 'National Nephrotic Syndrome Patient Day'

Published: 13th Dec, 2018

'National Nephrotic Syndrome Patient Day' will be on the 2nd of May 2019 at the Playhouse Theatre,Nottingham. We will not be taking bookings until nearer the time and just so you are aware we will charging £10 per booking.

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A Very Big Thankyou to 'Zurich Community Trust' for awarding us a grant of £1,750 !!!!!

Published: 13th Dec, 2018

Thankyou So much to David Harris for nominating our charity!!! I've also been been given £225.00 from Battens a local solicitors childrens trust too. These funds will be put towards a young people's activity day, because so many of our young people enjoyed getting together at the labs for the science day.

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Your local NeST Support Groups

Our aim is to make sure that nobody has to suffer alone, and to reassure you whatever your concern. If you have any questions or would simply like to talk to someone who knows exactly what you’re going through, then please get in touch.
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I want to help NeST run a support group in my area!

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